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Craig’s Story

 

I’m Craig and I am 36 years old. I was finally diagnosed with Primary Lymphedema in 2012 at the age of 30. But I’ve lived with this condition since I was 17 years old. I investigated what was going on through different points in my life but it took 13 years to correctly diagnose my condition.

By this point, discomfort was getting worse. All through my career I lived and worked with this condition until I turned 33. Then I made the decision to the leave the industry I’ve spent my entire career in. I wasn’t told very much about the condition or what to expect in the future. Over the last 3 years, different symptoms have developed so the doctors sent me to various specialists who sent me for many tests. Theses tests have not found anything wrong. At the same time the doctors are not addressing the condition they know I have. I can only presume there is a misunderstanding about this chronic condition and a lack of knowledge and awareness that is really frustrating.

I continue to struggle finding someone that understands Lymphedema. I’ve joined many different groups that support Lymphedema. These groups offer a support system where I can ask questions and have been inquiring if any other sufferers have the same discomfort as I do. As it turns out, the many discomforts I have, other people have also said they are experiencing.

Armed with this knowledge, I’ve started a personal blog highlighting my life and career, my travels through this journey of trying to find out more about this condition and what life has in store for me.

View Craig’s Blog

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