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Joshua’s Story

My name is Joshua and I live with two chronic diseases. The first is called Noonan’s syndrome I was born with it and diagnosed not long after birth. Noonan’s syndrome is a genetic disorder that prevents normal development in various parts of the body. These include unusual facial characteristics, short stature, heart defects along with other physical and possible developmental delays.

The second disease is called Lymphedema it is a chronic disease that results in a build up of lymph fluid (swelling) that occurs when the lymphatic system is either faulty or damaged. I developed it and was diagnosed with in my lower left leg when I was in my early 20s. I first noticed it after I had twisted my left ankle and the swelling wouldn’t go away. After few months of doctors visits. I was finally diagnosed when I was sent to see an endocrinologist. I’ve found out I’m one of the fortunate one’s as most go through years even decades before a proper diagnosis. . Neither of these diseases have a cure but they can be managed with treatment. I have since found out that   some individuals with Noonan’s syndrome develop lymphedema in the lower extremities in their teen’s or early 20s.

After my diagnosis I went through many years of self denial and depression. The result was I developed a life for unhealthy eating and inactivity naturally I gained weight.

After years of mistreating my body I now to live healthier though my continuing yoga practice, clean eating and self MLD I’m taking care of myself & my LE. I now advocate for Lymphedema & Noonan’s syndrome awareness as well a healthy life style.

I’m telling story and opening my life to help bring awareness and support to all those effected. If you or have a love one with one of both of these diseases I encourage you get treatment. You are not alone in your fight, never give up. I go by “lymphedema dude Joshua” on most social media if you like to get in contact with me.